Nothing much new here.
Jonathan's numbers are back down to zero again, have been for the past few days. He got a blood transfusion this morning. His vitals have been stable. He still doesn't want to eat, but that is okay for now because they are putting nutrition directly into his blood. Isn't that crazy?! With the GI feeding tube they could bypass his mouth, but now who even needs a stomach?! He... still manages to get sick though, and gave back some of his oral meds this evening.
Our stay is feeling a bit long already. Xav and I are taking turns staying the night in hospital with Jonathan. Tonight Patience and I are here, and Xav is at the Ronald McDonald House with Xavi and Moriah. We've only been here a month and a half. We've chatted with some who have been staying at the Ronald McDonald for two years!
Jonathan's numbers are back down to zero again, have been for the past few days. He got a blood transfusion this morning. His vitals have been stable. He still doesn't want to eat, but that is okay for now because they are putting nutrition directly into his blood. Isn't that crazy?! With the GI feeding tube they could bypass his mouth, but now who even needs a stomach?! He... still manages to get sick though, and gave back some of his oral meds this evening.
Our stay is feeling a bit long already. Xav and I are taking turns staying the night in hospital with Jonathan. Tonight Patience and I are here, and Xav is at the Ronald McDonald House with Xavi and Moriah. We've only been here a month and a half. We've chatted with some who have been staying at the Ronald McDonald for two years!
I just so want to thank anyone who has contributed to us financially. Xav, our family's provider, had his heart set on looking for work here the moment we settled into our first hospital room. He was praying for work. But I was praying that he'd be able to stay with me. I knew I couldn't manage family life in this setting without him. Well, the Lord is so so kind to me. Our needs have been met and Xav is getting in some really great parent-child relationship time.
I am so THANKFUL!! Thank you friends and family and thank you, Lord! We are so undeserving, but we are so thankful.
Ursula
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