Hi blog readers! I haven't been able to sit and type much so I've copied and pasted a couple of my facebook entries.
6/28/14
We were getting ready to be released from the hospital yesterday. Jonathan was going to have a weekend out. Xav and I had taken all sorts of teaching and instruction in order to take care of our immunosuppressed son with a line coming out of his heart. Then I did it. I lifted Jonathan out of his high chair and didn't realize his line was stuck in the chair. I nearly yanked that line right out... of his chest... well not really... But I did pull it out a little. I pulled it out far enough to keep us in the hospital for another night and to need another surgery for another Hickman line. Bummer. But the surgeons say it will be an easy surgery because they can use the current line to place a new line. The Lord knows. We again would ask for prayer for another good surgery. We may be released from the hospital yet this afternoon after surgery, which would give Jonathan a night or two with us at the Ronald McDonald House ( and maybe a trip to the zoo ).
We were getting ready to be released from the hospital yesterday. Jonathan was going to have a weekend out. Xav and I had taken all sorts of teaching and instruction in order to take care of our immunosuppressed son with a line coming out of his heart. Then I did it. I lifted Jonathan out of his high chair and didn't realize his line was stuck in the chair. I nearly yanked that line right out... of his chest... well not really... But I did pull it out a little. I pulled it out far enough to keep us in the hospital for another night and to need another surgery for another Hickman line. Bummer. But the surgeons say it will be an easy surgery because they can use the current line to place a new line. The Lord knows. We again would ask for prayer for another good surgery. We may be released from the hospital yet this afternoon after surgery, which would give Jonathan a night or two with us at the Ronald McDonald House ( and maybe a trip to the zoo ).
7/1/14
Xav has the iPad at the hospital, I'm on the laptop at the Ronald McDonald House. This picture that Xav posted an hour ago shows a little bit of how Jonathan is doing with this new round of chemo that started today. The last round of chemo seemed pretty gentle, not much nausea, not too hard to get through. But it also didn't quite have the desired effect the doctors were looking for. The bone marro...w aspirate that they took nearly a week ago showed over 2% leukemia cells remaining in the bone marrow where they were hoping for 0%. So that meant he needed a harder hit of chemo and I guess that is what he is getting now. Our poor little boy has been throwing up and is now dry-heaving, he has a fever and his oxygen level has dropped. So this time around is seeming a lot more difficult. Please pray for Jonathan. And please pray for Xav who will be with him through the night and probably won't be getting much rest. I am so thankful that Xav is such a good daddy.
Xav has the iPad at the hospital, I'm on the laptop at the Ronald McDonald House. This picture that Xav posted an hour ago shows a little bit of how Jonathan is doing with this new round of chemo that started today. The last round of chemo seemed pretty gentle, not much nausea, not too hard to get through. But it also didn't quite have the desired effect the doctors were looking for. The bone marro...w aspirate that they took nearly a week ago showed over 2% leukemia cells remaining in the bone marrow where they were hoping for 0%. So that meant he needed a harder hit of chemo and I guess that is what he is getting now. Our poor little boy has been throwing up and is now dry-heaving, he has a fever and his oxygen level has dropped. So this time around is seeming a lot more difficult. Please pray for Jonathan. And please pray for Xav who will be with him through the night and probably won't be getting much rest. I am so thankful that Xav is such a good daddy.
So thankful that little Jonathan has such a good Mom & Dad. We are praying for you daily that the Lord would make this a quicker healing than expected and would provide you both with His strength and help you see even more clearly that you can lean on His mighty right arm. We wish we were nearer to help you in some way.
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