Below are some Facebook updates from this last week: Thanks so much for praying!
September 15th:
Jonathan is doing better today! He got to take off the mask this morning and has been using a nasal cannula with good results. He has been getting rid of some of his fluid retention with the help of diuretics. We are still in the PICU, but things are looking a bit better today!
September 14th:
Not much to report on Jonathan. He is still in the PICU. His ins continue to be more than his outs and he is still all puffed up. They've added another diuretic on top of the lasix. He has a little mask covering his eyes, nose and mouth, creating a seal like a scuba mask, which is pressurizing the oxygen going into him to help fill his lungs. They had switched his NG feeding to ND feeding and now they have stopped the ND and are giving him TPN IV, this is because they can't be sure he isn't refluxing his feeds and aspirating them. The docs can't really say why this is all happening, just trying to treat the symptoms until his body gets back to doing its job.
Xav is still on for nights with Jonathan. He is getting pretty tired. Lord willing, Grandpa Xavier will be here tomorrow evening and enable Xav to get some much needed rest.
September 13th:
Jonathan moved into the ICU this evening. His breathing has been too labored for too long. His body has continued to retain fluid. I'll try to update again in the morning. Please pray for our puffy son and his tired daddy.
September 10th:
The doctors gave Jonathan lasix yesterday which drained some of the excess fluid that has been building up in him. The albumen in his blood was a little low which somehow figures into the proper functioning of the arteries in getting rid of excess fluid. So this morning they gave him albumen and lasix again. He's still puffy and acting uncomfortable but not quite as puffy as he was yesterday. And still needing some blow by oxygen.
Jonathan's lungs have been a big concern lately. He has been dealing with fluid building up around them. He's had lots of chest X-rays lately and the one from a few minutes ago shows more build up of fluid and possibly some collapse of his lungs. He is visibly laboring to breath. Xav's been up with him since 4am. ...Seems like these bigger lung problems have popped up after being put under for a CT scan a few days ago and then again for a broncoscopy and wash to see if anything bad is growing in his lungs. Jonathan's poor little body is swollen. His eyes were nearly swollen shut yesterday. ... He's not in the ICU yet, so we think that is a good sign. ...Just still asking for prayers, in Jesus name. We are trusting the Lord. Jonathan's life is in His hand. He is good and He loves us. The doctors are trying to do what is best but their ability is so limited. So glad we can call on the One Who is more than able, Whose wisdom is infinite.
September 6th:
September 15th:
Jonathan is doing better today! He got to take off the mask this morning and has been using a nasal cannula with good results. He has been getting rid of some of his fluid retention with the help of diuretics. We are still in the PICU, but things are looking a bit better today!
September 14th:
Not much to report on Jonathan. He is still in the PICU. His ins continue to be more than his outs and he is still all puffed up. They've added another diuretic on top of the lasix. He has a little mask covering his eyes, nose and mouth, creating a seal like a scuba mask, which is pressurizing the oxygen going into him to help fill his lungs. They had switched his NG feeding to ND feeding and now they have stopped the ND and are giving him TPN IV, this is because they can't be sure he isn't refluxing his feeds and aspirating them. The docs can't really say why this is all happening, just trying to treat the symptoms until his body gets back to doing its job. Xav is still on for nights with Jonathan. He is getting pretty tired. Lord willing, Grandpa Xavier will be here tomorrow evening and enable Xav to get some much needed rest.
September 13th:
Jonathan moved into the ICU this evening. His breathing has been too labored for too long. His body has continued to retain fluid. I'll try to update again in the morning. Please pray for our puffy son and his tired daddy.
September 10th:
The doctors gave Jonathan lasix yesterday which drained some of the excess fluid that has been building up in him. The albumen in his blood was a little low which somehow figures into the proper functioning of the arteries in getting rid of excess fluid. So this morning they gave him albumen and lasix again. He's still puffy and acting uncomfortable but not quite as puffy as he was yesterday. And still needing some blow by oxygen.
Jonathan's lungs have been a big concern lately. He has been dealing with fluid building up around them. He's had lots of chest X-rays lately and the one from a few minutes ago shows more build up of fluid and possibly some collapse of his lungs. He is visibly laboring to breath. Xav's been up with him since 4am. ...Seems like these bigger lung problems have popped up after being put under for a CT scan a few days ago and then again for a broncoscopy and wash to see if anything bad is growing in his lungs. Jonathan's poor little body is swollen. His eyes were nearly swollen shut yesterday. ... He's not in the ICU yet, so we think that is a good sign. ...Just still asking for prayers, in Jesus name. We are trusting the Lord. Jonathan's life is in His hand. He is good and He loves us. The doctors are trying to do what is best but their ability is so limited. So glad we can call on the One Who is more than able, Whose wisdom is infinite.
September 6th:
