Thursday, June 19, 2014

Juggling Act

With our two older children here there is not much time for blogging. Trying to be a family as daddy and Jonathan stay at the hospital and Xavi, Moriah, Patience and I stay at the Ronald McDonald House is not seeming very easy right now. Feels like a juggling act.

With all that aside, however, Jonathan has been doing pretty well. He has been on three antibiotics to fight the types of bacteria they have found in his blood. His fever has been under control. He really hasn't had one since about a day after they started administering the antibiotics. But here is the flip side, and the area in which we are now asking for prayer. One of the bacterial infections being targeted is a common one, some sort of staff infection. The other infection is from a much less common strain and the doctors have been concerned that is coming from his Hickman line. They looked into the line with an ultrasound and found a small clot. Then they tried to clean the bacteria out of the line with an ethanol block. I guess that didn't work. Two groups of doctors have been discussing the removal of the line, the Oncology team and the Infectious Disease team, and they have finally come to the conclusion that it needs to go. So tomorrow (6/20) Jonathan will again be put under with anesthesia and be in surgery sometime in the morning. Please pray that all goes well concerning that. We'd also ask for prayer as they will have to put an IV into his arm for the time being. They are thinking they may replace the Hickman as soon as Monday.

Jonathan, otherwise, has been living the hospital life. He's getting physical therapy, occupational therapy, he now has little orthotic braces to help him in learning to walk. Once in a while he's getting music therapy. He's eating great. The nurses, doctors, CNA's all love him.

And we are thanking the Lord for a friend who is with us for a few weeks to help out with our children, Corrie Zastrow by name. What a blessing! She has made it possible for mommy to get to spend a little time with Jonathan as Patience has been having a runny nose and isn't allowed on the oncology floor.

We are so so thankful for all the love and support we have been showered with! And we are most thankful for the prayers of the saints, our brothers and sisters in the Lord. We know the "effectual, fervent prayer of a righteous man avails much." (I think I quoted that right.) We know we are here to give glory to our God and hope that we can share the love of Jesus with those who are in the same boat that we are in right now. He is so faithful and He is so good!

2 comments:

  1. I am so thankful that Corrie was able to come out and support you! Thank you so much Ursula for taking the time to write this. We are praying for all of you each day, bathing you in that prayer that our great Shepherd loves to."ever lives to", bring before our Father. Praying in general for His strength, hope, peace, and wisdom, and specifically for todays surgery, and supernatural guidance for the medical staff there.

    We love you!

    Chad

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  2. We are praying for you guys, dear Ursula! God has all of you in His gracious hands!

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