2 Weeks Down

Was it yesterday that I told you that Jonathan was doing well with an NG feeding tube? Well, as he woke from nap time yesterday he pulled that thing back out. :/ ... :)  And now that it is out we are up for the challenge: can we get enough calories into this boy? and can we convince him to take his oral meds? I hope so. It is nice to have one less tube to get tangled in.

Tomorrow Xav flies to Great Falls and will be driving back on Sunday with Xavi and Moriah in our minivan. It will be good to be all together again. It's been two weeks since we arrived at Seattle Children's Hospital. When we kissed our two older children and said our good byes, leaving them in grandma and grandpa's care, we didn't know that we would be whisked away that night.

...I posted on Facebook a couple hours ago. Jonathan has a fever. I think it is actually an expected part of going through chemotherapy, but still not pleasant, and still something the doctors want to stay on top of as the immune system is in no way able to do its job. Jonathan's fever got up to about 103°. He has been given Tylenol and antibiotics already. Last checked his fever was still over 100°.

Thank you, brothers and sisters, who are lifting up our son in prayer.